The Data Drives Decision was moderated by Indu, with panel speakers such as Jamie Heywood (Co-Founder and Chairman, PatientsLikeMe), David Hale (Project Manager, National Library of Medicine, National Institutes of Health), Hugo Stephenson (Chief Executive Officer and Founder, iGuard), Mark Walinske (Chief Executive Officer, Boundary Medical), and Daniel Palestrant (MD, Chief Executive Officer and Founder, Sermo).
Explore the world of consumer tools, including wellness, content and community, medication adherence and consumer tools for self management. Previously health producer for CNN, Marjorie Martin is the SVP & GM of EverydayHEALTH. Here she explains how communities work with the healthcare system and introduce new tools.
This panel includes speakers Kenneth Buetow (Associate Director, BioInformatics, National Cancer Institute & Founder, caBIG), Patrick Soon-Shiong (Executive Chairman, Abraxis Health), and Josh Sommer (Executive Director, Chordoma Foundation). Coming together to discuss how the Health 2.0 community can get involved in working with data and services, this panel approaches the issue from a variety of perspectives.
Kenneth Buetow, Associate Director, BioInformatics, National Cancer Institute & Founder, caBIG (cancer Biomedical Informatics Grid)
Ken has an amazing set of academic and government accomplishments in genetics research and the
use of information technology for biomedical challenges. But we’ve invited him here today because he
initiated and oversees the caBIG (cancer Biomedical Informatics Grid) program, an initiative connecting
the entire cancer community in a “World Wide Web” of biomedical research. We’re really excited to see
how his version of Research 2.0 jibes with the data being generated in Health 2.0.
Patrick Soon-Shiong, Executive Chairman, Abraxis Health
Patrick has had (at least) three groundbreaking careers so far. Graduating medical school in South
Africa during the apartheid era, he later moved to the faculty at UCLA where he performed the world’s
first encapsulated human islet transplant. He next founded two multi-billion dollar pharmaceutical
companies; injectables maker American Pharma Partners (APP) and Abraxis Bioscience which
developed Patrick’s research in nanoparticle delivery into the breast cancer drug Abraxane. Following
the sale of APP to Fresnius, and with the founding of the Health Transformation Institute, board
membership in Dossia and much, much more, Abraxis Health is now trying nothing short of funding
and leading a transformation of health information technology by using it to connect bioscience, care
delivery and finance.
Todd Park, Chief Technology Officer, US Health and Human Services
Since being dragged back to the East Coast from California, Todd has been spending 25 hours a day
promoting the cause of Liberación. But he’s not become a health care Che Guevara—it’s data that
he wants to free, and how! Just launched in March, we’re already seeing amazing things out of the
Community Health Data Initiative which had its big coming out party just last week. Here Todd’s
going to explain how the Health 2.0 community can get involved in working with data and services
from HHS (and many others) to improve health for all Americans. Before he joined HHS, Todd was co-
founder of athenahealth.
Josh Sommer, Executive Director, Chordoma Foundation
Josh was an freshman at Duke University when he was diagnosed with chordoma—a rare bone cancer
of the skull and spine. With his mother Dr. Simone Sommer, Josh founded the Chordoma Foundation in
2007. In addition to strategically funding research and opening up cell lines, the Foundation works to
facilitate the flow of information between researchers and is creating a template that can be applied to
speed the development of treatments for other similarly rare cancers. Josh also works with Dr. Michael
Kelley, a Duke oncologist studying the genetic basis of chordoma. And while some of us spent college
playing beer pong, at age 20 self-described college drop-out Josh was being honored as a Person of the
Year in 2008 by ABCNews.
Everyday Health, the leading provider of online consumer health information, offers interactive tools
that allow consumers to actively manage their health. During the last 12 months Everyday Health has
launched several leading edge applications that are changing the way consumers manage their health.
During the Health 2.0 Deep Dive, two of the applications will be demonstrated:
The Everyday Health Symptom Checker is a sophisticated yet intuitive symptom triage tool
that uses interactive video segments that respond to user input, helping consumers understand
the severity of their symptoms, recommending appropriate diagnostic tests and referring them
to speci c types of providers for care.
The Everyday Health Compliance Series is a group of interactive videos that interview consum-
ers about their level of compliance in managing chronic conditions. Each video series, which
focuses on a specific chronic condition, asks the condition sufferer about appropriate measures
for condition management and compliance. For each set of questions the consumer is provided
immediate feedback—either praise for compliance or warnings about possible consequences
of non-compliance. At the end of the session the consumer is given a summary report showing
areas of success and areas for improvement.
Ever since Health 2.0 started conferences, we’ve been asked to feature the voice of the patient. For this conference we got out of the way completely and asked Gilles Frydman to find us some great patients and caregivers to talk about their experiences and hopes for innovation. So here’s your opportunity to hear five vocal ePatients who will share their personal journeys and experiences navigating the healthcare system and the world of Health 2.0. We promise you will not be disappointed.